It is with great sorrow that we said goodbye to our beloved director, Caroline Robinson Foster, at her Celebration of Life held on Monday, July 14th. Please see our activities page for Caroline's extended obituary.
Thank you Alabama State Legislature for passing Carley''s Law. This act provides hope and will greatly improve the quality of life for individuals with epilepsy/seizure disorders.
Caroline Foster, Executive Director
UAB CANNABIDIOL PROGRAM
UAB will create a cannabidiol program for research and treatment of debilitating seizures in response to the enactment of Carly’s Law by the Alabama legislature and Governor Bentley.
The Cannabidiol Program will be established by the UAB Department of Neurology, which includes physicians practicing at the Kirklin Clinic and UAB Hospital as well as at Children’s of Alabama. The co-directors will be Jerzy P. Szaflarski, MD. Ph.D., Martina Bebin, M.D., M.P.A, and Leon Dure, M..D
The program must meet regulatory requirements of the Food and Drug Administration, The Drug Enforcement Administration and the university’s Institutional Review Board; approvals must be obtained be fore the program can be launched. This process could take six months or longer.
Patients seeking an appointment with the UAB cannabidiol program call
205-975-8883 or email email@example.com for more information.
Epilepsy Awareness Initiatives
I am a recruitment specialist with Snow Companies, a healthcare communications company. We are working with Eisai, Inc. in the creation of patient and caregiver education initiatives for the epilepsy community.
As part of the development of these progams and services , Eisai, Inc. is hoping to identify people living with partial onset seizures and their journey with managing treatment.
We would appreciate your help in identifying patients and caregivers who may be willing to participate in potential initiatives aimed at raising awareness of epilepsy. Initiatives may include public speaking opportunities, omline programs, or participation in photo or video projects.
In order to maintain patient privacy, we ask that individuals self-nominate by email Eisai@snow-companies.com or call 1-855-578-5348 for more information.
We appreciate any help you be able to offer in identifying interested individuals, understanding that not all who may be interested will be eligible to participate.
Heather Morse, RPh, Advocacy and Recruitment Specialist, firstname.lastname@example.org
If you have any questions email email@example.com or call him at 251-341-0170.
Epilepsy Awareness Club in Madison, AL
CHANGES AHEAD FOR CLIENTS
Beginning in November, Epilepsy Awareness Month, the Epilepsy Foundation of Alabama will initiate statewide efforts to broaden the information base and awareness of seizure disorders and epilepsy throughout Alabama.
Effective November 1, 2013 all outreach groups will be" Epilepsy Awareness Clubs" with the new mission of bringing the latest information on seizure diagnosis and management. At the same time we will bring more uniformity in our delivery of services statewide through these clubs will serve clients with emphasis on the positives, such as belonging and awareness.
The change will be more than cosmetic as the roll of the Awareness Clubs unfolds. If you are interested in bringing a posotive sound and participating in our efforts contact David A. Toenes, Director of Client Services at firstname.lastname@example.org or call David at 1-800-626-1582.
Epilepsy Awareness Clubs
The Epilepsy Awareness Clubs throughout the state will provide a new,
up to date outreach capacity designed to meet the needs of the growing population
Of Persons With Epilepsy (PWE). Each will interlock with the other through the Epilepsy Foundation of Alabama offices.
The function of the EWC is to provide a homogenous group of individuals with epilepsy seeking additional information on treatment, medications, and the newest treatment modalities for epilepsy. Additionally, the Awareness clubs will serve as established meeting groups and outreach engines.
The initial sites for the Epilepsy Awareness Sites are:
Mobile (Andulsia/Brewton), Montgomery, Dothan, Birmingham, and Huntsville
VOLUNTEERS NEEDED !!!!!
The Epilepsy Foundation of Alabama is organizing a Volunteer Group. This group will assist the foundation in all areas of operation to include, planning and organizing events, training in the foundation’s educational programs i.e. “Managing Students with Seizures,” Training for School Nurses, Law Enforcement Initiative, for presentation to community groups, schools, businesses etc.
Seizures affect 1 in every 100 individuals and is a very misunderstood disorder. It is the leading neurological disorder in children, and the third leading neurological disorder in adults, third only to strokes and alzheimers.
For information call (251)341-0170 or website www.epilepsyfoundationalabama.org
The Epilepsy Foundation of Alabama is a voluntary, nonprofit organization dedicated to enhancing the quality of life for individuals affected by epilepsy in 67 counties across Alabama.
Institute of Medicine
Epilepsy Across the Spectrum Quiz