Camp is coming soon! If interested go to the Camp ASCCA website for information and to fill out camp application. Camp will be the week of June 28-July 3, Session 1
The website is: www.campascca.org
Bill to Bring Transparency to DEA Scheduling Reintroduced: Dr. Nathan Fountain, Professional Advisory Board chairman, testified in support of legislation that would speed up the DEA scheduling process and make it more transparent, changes which would bring new therapies to people faster. Following his testimony, the bill (H.R. 639) was reintroduced. Learn more about the testimony, the bill, and ask your Representative to support H.R. 639 atwww.epilepsy.com/DEA
We would like to welcome the newly elected Board officers of the Epilepsy Foundation of Alabama for 2015. Kelly Morris, President; Angel Persson, Vice-President; John Bedsole, Treasurer; and Scott Stevens, Secretary.
"Individuals with and without disabilities are invited to participate in this research study. The survey will be available until October 26, 2016.
To access the study's website, please click on the following link:
UAB CANNABIDIOL PROGRAM
UAB will create a cannabidiol program for research and treatment of debilitating seizures in response to the enactment of Carly’s Law by the Alabama legislature and Governor Bentley.
The Cannabidiol Program will be established by the UAB Department of Neurology, which includes physicians practicing at the Kirklin Clinic and UAB Hospital as well as at Children’s of Alabama. The co-directors will be Jerzy P. Szaflarski, MD. Ph.D., Martina Bebin, M.D., M.P.A, and Leon Dure, M..D
The program must meet regulatory requirements of the Food and Drug Administration, The Drug Enforcement Administration and the university’s Institutional Review Board; approvals must be obtained be fore the program can be launched. This process could take six months or longer.
Patients seeking an appointment with the UAB cannabidiol program call
205-975-8883 or email firstname.lastname@example.org for more information.
Epilepsy Awareness Initiatives
If you have any questions email email@example.com or call him at 251-341-0170.
Epilepsy Awareness Club in Madison, AL
CHANGES AHEAD FOR CLIENTS
Beginning in November, Epilepsy Awareness Month, the Epilepsy Foundation of Alabama will initiate statewide efforts to broaden the information base and awareness of seizure disorders and epilepsy throughout Alabama.
All outreach groups will be" Epilepsy Awareness Clubs" with the new mission of bringing the latest information on seizure diagnosis and management. At the same time we will bring more uniformity in our delivery of services statewide through these clubs will serve clients with emphasis on the positives, such as belonging and awareness.
The change will be more than cosmetic as the roll of the Awareness Clubs unfolds. If you are interested in bringing a posotive sound and participating in our efforts contact David A. Toenes, Director of Client Services at firstname.lastname@example.org or call David at 1-800-626-1582.
Epilepsy Awareness Clubs
The Epilepsy Awareness Clubs throughout the state will provide a new,
up to date outreach capacity designed to meet the needs of the growing population
Of Persons With Epilepsy (PWE). Each will interlock with the other through the Epilepsy Foundation of Alabama offices.
The function of the EWC is to provide a homogenous group of individuals with epilepsy seeking additional information on treatment, medications, and the newest treatment modalities for epilepsy. Additionally, the Awareness clubs will serve as established meeting groups and outreach engines.
The initial sites for the Epilepsy Awareness Sites are:
Mobile (Andulsia/Brewton), Montgomery, Dothan, Birmingham, and Huntsville
The Epilepsy Foundation of Alabama is a voluntary, nonprofit organization dedicated to enhancing the quality of life for individuals affected by epilepsy in 67 counties across Alabama.
Institute of Medicine
Epilepsy Across the Spectrum Quiz